There is so much that comes with that extra chromosome. There are struggles, but there is also pure, raw joy that comes with reframing your mind to step back and see what your child actually brings to the life table. Johnny and his extra chromosome have taken so much pressure off of me as a parent. Life has turned from "When is each child going to meet this milestone" to "Wow! It is amazing that they can already do that!" He has taken us from "What is next?" to "What is now?" We approach each change a bit more momentously and with much more enthusiasm.
He is thoroughly uninterested in us