We are fairly well researched and connected as far as Down syndrome goes, but we really wanted to get Johnny into the clinic. It takes awhile to get in (we have been waiting for 10 months...that is a short wait), but I found the experts to be worth it. While they only gave us a few tokens of new information, we were pleased for several reasons.
First- They are experts. Hearing them say that Johnny is doing great and is healthy, is totally different from my pediatrician (who I love) saying that he is doing great and healthy. They see kids all over the spectrum on a regular basis, they know what great looks like. My pediatrician rarely sees kids with Ds, their sample set to pull from is just smaller. Additionally, our OT, our new Speech Pathologist, their Speech Path., their OT, and both Doctors who assessed Johnny were all on the same mark for his development. To hear 6 different medical professional make the same ascertains for Johnny is important, it means that he really is measuring at that mark.
Johnny and His BFF